Your Path to Expert LGMD Care Starts Here

If you or someone you love is living with LGMD, this page can help you take the next step toward expert, coordinated care. Choose a center, fill out your information, and get guidance on what comes next.

Your Path to Expert LGMD Care Starts Here

If you or someone you love is living with LGMD, this page can help you take the next step toward expert, coordinated care. Choose a center, fill our your infromation, and get guidance on what comes next.

Your Path to Expert LGMD Care Starts Here

If you or someone you love is living with LGMD, this page can help you take the next step toward expert, coordinated care. Choose a center, fill our your infromation, and get guidance on what comes next.

Step 1: Choose a Center

Explore the inaugural LGMD Centers of Excellence

Each center below is part of the growing pathway. Select a center to pre-fill your request or ask us to help you choose.

State Iconsmn
Minneapolis, MN

LGMD Center of Excellence at University of Minnesota

University of Minnesota Medical School

State Iconsva
Richmond, VA

LGMD Center of Excellence at Virginia Commonwealth University

Virginia Commonwealth University

State Iconsia
Iowa City, IA

LGMD Center of Excellence at University of Iowa

University of Iowa Hospitals & Clinics

State Iconstx
San Antonio, TX

LGMD Center of Excellence at UT Health San Antonio

University of Texas Health San Antonio

State Iconsfl
Gainesville, FL

LGMD Center of Excellence at University of Florida

University of Florida

Need help choosing?

You do not need to have everything figured out.

If you are unsure which center is the best fit, we can help guide you to the right next step.

Why this pathway exists

The goal is to make expert LGMD care easier to reach.

Finding the right LGMD care can feel scattered and overwhelming. Patients and families are often left trying to figure out where to go, who to contact, and what kind of evaluation they need.

The LGMD Centers of Excellence pathway was created to make that process clearer, more connected, and more supportive.

Expert LGMD-focused care

Connect with centers built to support complex neuromuscular needs.

A clearer starting point

Move forward without piecing everything together on your own.

Support from The Speak Foundation

Your request stays connected to a real pathway, not just a directory listing.

Better follow-through

Reduce confusion and keep next steps moving with more clarity.

Step 2: Request information

Tell us a little about who is registering.

We collect this information so we can send the right next steps and support you through the process.

  • No confirmed LGMD subtype is required.
  • Required fields stay focused on your request.

  • Your information will never be shared without your permission.

Center Request Intake

Request information

FAQ

Common questions

No. You can still reach out if you are still pursuing diagnosis, genetic testing, or evaluation.

Yes. Caregivers and family members can submit a request on behalf of a loved one.

The Speak Foundation will review your request and follow up with the next-step information connected to your selection.

Your information is collected by The Speak Foundation so your request can be processed and supported. It will not be sold or shared without your permission.

No. This page is intended to help patients and families find information and next steps. It is not a substitute for medical advice, diagnosis, or treatment from a licensed healthcare professional.

Ready to take the next step?

Request center information through Speak.

Choose a center or ask Speak for guidance on the right next step.

A patient pathway from The Speak Foundation to help individuals and families connect with expert LGMD care.